
At Their Fingertips
November 1, 2015
1h 9m
Documentary
Overview
Nadia Kuznetsova is 28 years old, she lives in Veliky Novgorod, graduated from school and University here, and dreams of going to the sea - and getting her fingers back. Nadia has a rare genetic disease-epidermolysis bullosa, which is called "butterfly syndrome". The patient's skin is injured by any touch. The disease is incurable: as Nadia herself says, "I don't fight it – I live with it." She is fighting for something else - to lead the life of an ordinary person.
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Where to watch
In United States
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